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Reframing Disability and Quality of Life

Part of the Social Indicators Research Series Book Series (volume 52)

Editors: Warren, Narelle; Manderson, Lenore

DOI: 10.1007/978-94-007-3018-2

ISBN: 978-94-007-3017-5

Publisher: Springer Netherlands - Springer Journals

Jan 30, 2013

1 - 10 of 13 Chapters

LitStream

Chapter 1Reframing Disability and Quality of Life: Contextual Nuances

Warren, Narelle; Manderson, Lenore

Pages: 1 –16

[Research conducted with people living with a long-term condition or disability has relied primarily on quantitative instrumentation to determine quality of life. While quantitative instruments allow summary assessments of how health conditions impact upon people’s well-being, physical...
LitStream

Chapter 2Uncertainty, Vulnerability, and Isolation: Factors Framing Quality of Life with Aphasia in a South African Township

Legg, Carol; Penn, Claire

Pages: 17 –37

[Research into quality of life with aphasia has predominantly drawn on a universalist framework of understanding of quality of life that has entrenched disembodied constructions of society in the literature. In this chapter, we present a different perspective. We explore case study material from...
LitStream

Chapter 3Disability and Well-Being in Northern Nigeria

Renne, Elisha P.

Pages: 39 –59

[In this chapter, I examine the meaning of well-being (lafiya) for physically disabled women and men—mainly as a result of polio—who live in Zaria, in Northern Nigeria. For them, the physical condition of being lame is not necessarily a source of stigma. Rather, the disabled person who has...
LitStream

Chapter 4The Dignity of Children: How to Evaluate Bodies’ (Im)Permeability

Wainer, Rafael

Pages: 61 –78

[This chapter focuses on which subjects and bodies are produced from the everyday (im)permeability that children with leukemia face at a children’s hospital in Buenos Aires and how this affects children’s dignity of life. I will use (im)permeability to think on the formation of particular...
LitStream

Chapter 5Who, How, and What? Quality of Life and Psychosocial Cancer Research

Hansen, Helle Ploug; Tjørnhøj-Thomsen, Tine

Pages: 79 –93

[“Quality of life” is a key concept in research and clinical practice on severe and chronic diseases. There is, therefore, a need to scrutinize and reflect on the concept and discuss how one might best go about investigating and assessing what constitutes quality of life for people with chronic...
LitStream

Chapter 6Quality of Life and End-of-Life Decisions After Brain Injury

Demertzi, Athena; Gosseries, Olivia; Ledoux, Didier; Laureys, Steven; Bruno, Marie-Aurélie

Pages: 95 –110

[The locked-in syndrome (LIS) is a neurologic disorder characterized by the presence of sustained eye opening, intact cognitive function, aphonia, and quadriplegia, most frequently caused by a vascular brainstem lesion. Primary mode of communication is eye movements or blinking. The mortality of...
LitStream

Chapter 7Transforming Social Disability into Normality: Medical Discourses on Kidney Transplantation in Cyprus

Constantinou, Costas S.

Pages: 111 –128

[In this chapter, I explore the various kidney transplant discourses that the local transplant centre and patient groups have developed on the island of Cyprus, in order to transform social disability into normality. Through a systematic thematic analysis of media outputs, printed materials,...
LitStream

Chapter 8Spinal Cord Injury, Sport, and the Narrative Possibilities of Posttraumatic Growth

Sparkes, Andrew C.; Smith, Brett

Pages: 129 –143

[Narratives are actors that do things in terms of shaping experience. They perform the work of subjectification informing people who they ought to be, who they might like to be, and who they can be (Frank, Health 10(4):421–440, 2006, Letting stories breathe: a socio-narratology. University of...
LitStream

Chapter 9Narrating a Return to Work After Spinal Cord Injury

Smith-Morris, Carolyn; Lopez, Gilberto; Ottomanelli, Lisa; Goetz, Lance

Pages: 145 –162

[Perhaps no social scientific tool is more important to the study of illness and rehabilitation than the narrative. They are not only the vehicle by which treatment for spinal cord injury (SCI), recovery, and adjustment occur but are also the essential communicative device that allow social...
LitStream

Chapter 10Sports, Disability, and the Reframing of the Post-injury Soldier

Messinger, Seth D.

Pages: 163 –178

[In this chapter, I discuss the role that sports plays in framing the ideal physical rehabilitation patient in the United States Armed Forces Amputee Patient Care Program (APCP) at the Walter Reed Army Medical Center. Program leaders and clinicians emphasize the important role that sports can...

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