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AJOB Empirical Bioethics

Subject Areas: Philosophy
Publisher: Taylor & Francis - Taylor & Francis
ISSN: 2329-4523
SJR: 22

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Journal Article

“I Have Fought for so Many Things”: Disadvantaged families’ Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing

Ackerman, Sara L.; Brown, Julia E.H.; Zamora, Astrid; Outram, Simon

2023 AJOB Empirical Bioethics

doi:10.1080/23294515.2023.2209747 pmid:37162201

Abstract Background Families whose child has unexplained intellectual or developmental differences often hope that a genetic diagnosis will lower barriers to community-based therapeutic and support services. However, there is little known about efforts to mobilize genetic information outside the...

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