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Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales

Methodological reflections on the recruitment and engagement of people for cancer screening... Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants’ needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Australian Journal of Primary Health CSIRO Publishing

Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales

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Publisher
CSIRO Publishing
Copyright
Copyright © The Author(s). Published by CSIRO Publishing
ISSN
1448-7527
eISSN
1836-7399
DOI
10.1071/PY22259
Publisher site
See Article on Publisher Site

Abstract

Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants’ needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.

Journal

Australian Journal of Primary HealthCSIRO Publishing

Published: Mar 6, 2023

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