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Experiences of whānau Māori caring for a young child on the autism spectrum

Experiences of whānau Māori caring for a young child on the autism spectrum This mixed-methods study aimed to explore the experiences and goals of Māori parents and whānau (families) caring for young autistic children. Data were collected via a rōpū kōrero (focus group) and an online questionnaire, with a total of 33 parents and whānau participating in at least one phase of the study. Reflexive thematic analysis was used to analyse rōpū kōrero data with findings used to inform the design of an online questionnaire. Questionnaire responses were summarised using descriptive statistics. Results indicate that experience and perceived helpfulness of supports varied across participants. Communication and values-based goals were a high priority for most participants, and most rated cultural goals as important. Findings highlight the value of considering parent and whānau voices, especially those from Indigenous communities. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png AlterNative SAGE

Experiences of whānau Māori caring for a young child on the autism spectrum

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References (39)

Publisher
SAGE
Copyright
© The Author(s) 2023
ISSN
1177-1801
eISSN
1174-1740
DOI
10.1177/11771801231167652
Publisher site
See Article on Publisher Site

Abstract

This mixed-methods study aimed to explore the experiences and goals of Māori parents and whānau (families) caring for young autistic children. Data were collected via a rōpū kōrero (focus group) and an online questionnaire, with a total of 33 parents and whānau participating in at least one phase of the study. Reflexive thematic analysis was used to analyse rōpū kōrero data with findings used to inform the design of an online questionnaire. Questionnaire responses were summarised using descriptive statistics. Results indicate that experience and perceived helpfulness of supports varied across participants. Communication and values-based goals were a high priority for most participants, and most rated cultural goals as important. Findings highlight the value of considering parent and whānau voices, especially those from Indigenous communities.

Journal

AlterNativeSAGE

Published: Jun 1, 2023

Keywords: autism; New Zealand Māori; parent perspectives; takiwātanga

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