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[The purpose of this chapter is to present a framework for the measurement and use of quality of life-related personal outcomes for persons with intellectual and closely related developmental disabilities. The chapter is composed of two major sections. In the first section (“the measurement of quality of life-related personal outcomes”) the author discusses quality of life (QOL) measurement guidelines, a QOL measurement model, and a framework for measuring QOL-related personal outcomes. In the second section (“the primary use of the QOL conceptual model”) the author discusses a framework for service delivery, evidence-based practices, and quality improvement strategies. The chapter should be read and understood within the context of two significant trends impacting current policies and practices regarding persons with ID/DD: (a) the desire among stakeholders for quality services and personal outcomes; and (b) the need for organizations to improve their performance and accountability through systematically collecting and analyzing QOL-related data and information, and implementing quality improvement strategies based on the analysis.]
Published: Aug 5, 2010
Keywords: Personal Outcome; Methodological Pluralism; Indicator Item; Emic Property; Implement Quality Improvement
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