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Quality of life from the point of view of Latin American families: a participative research study

Quality of life from the point of view of Latin American families: a participative research study Background To date, little research has focused on what factors constitute a quality of life (QOL) among Latin American families with a member who is intellectually disabled. Method Total 180 Latin American families cooperated in a participative research project. During 18 months, the families and a team exchanged information about their QOL by means of questionnaires and grids that the families analysed and completed at their homes. Results In Latin America, families attribute utmost importance to interpersonal relations and emotional well‐being. In addition, results identified a number of QOL domains and indicators reflective of family‐centred QOL among Latin American families. A tool with 42 indicators grouped in six areas was obtained Conclusions Quality of life is a concept that has meaning and structure which varies considerably from culture to culture. A topologic QOL model is presented to facilitate the cross‐cultural understanding of the QOL construct. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Intellectual Disability Research Wiley

Quality of life from the point of view of Latin American families: a participative research study

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References (2)

Publisher
Wiley
Copyright
Copyright © 2005 Wiley Subscription Services, Inc., A Wiley Company
ISSN
0964-2633
eISSN
1365-2788
DOI
10.1111/j.1365-2788.2005.00752.x
pmid
16162128
Publisher site
See Article on Publisher Site

Abstract

Background To date, little research has focused on what factors constitute a quality of life (QOL) among Latin American families with a member who is intellectually disabled. Method Total 180 Latin American families cooperated in a participative research project. During 18 months, the families and a team exchanged information about their QOL by means of questionnaires and grids that the families analysed and completed at their homes. Results In Latin America, families attribute utmost importance to interpersonal relations and emotional well‐being. In addition, results identified a number of QOL domains and indicators reflective of family‐centred QOL among Latin American families. A tool with 42 indicators grouped in six areas was obtained Conclusions Quality of life is a concept that has meaning and structure which varies considerably from culture to culture. A topologic QOL model is presented to facilitate the cross‐cultural understanding of the QOL construct.

Journal

Journal of Intellectual Disability ResearchWiley

Published: Oct 1, 2005

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