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Proxy Evaluation of Health-Related Quality of Life A Conceptual Framework for Understanding Multiple Proxy Perspectives

Proxy Evaluation of Health-Related Quality of Life A Conceptual Framework for Understanding... ORIGINAL ARTICLE Proxy Evaluation of Health-Related Quality of Life A Conceptual Framework for Understanding Multiple Proxy Perspectives A. Simon Pickard, PhD,* and Sara J. Knight, PhD† proxy HRQL assessments from each viewpoint. Future research and Abstract: Proxy assessment of health-related quality of life (HRQL) use of proxy raters of HRQL in clinical trials, population health may be sought to substitute for, or to complement, patient self- monitoring, resource allocation, and clinical management can be assessment. The viewpoint from which the proxy is asked to assess informed by explicit consideration of the suggested framework. the patient is a subtle yet important aspect of proxy assessment. Proxy assessments can be elicited by asking a proxy to assess the Key Words: proxy, health status, caregiving, quality of life, patient as they think the patient would respond (ie, proxy-patient provider/patient communication perspective) or for the proxy to provide their own perspective on the (Med Care 2005;43: 493– 499) patient’s HRQL (ie, proxy-proxy perspective). In this article, we introduce a framework for differentiating between and understand- ing HRQL assessments according to rater viewpoint. The difference between patient self-assessment and the proxy-patient perspective is defined as the inter-rater gap, whereas the difference between the ealth-related http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Medical Care Wolters Kluwer Health

Proxy Evaluation of Health-Related Quality of Life A Conceptual Framework for Understanding Multiple Proxy Perspectives

Medical Care , Volume 43 (5) – May 1, 2005

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ISSN
0025-7079
eISSN
1537-1948
DOI
10.1097/01.mlr.0000160419.27642.a8
Publisher site
See Article on Publisher Site

Abstract

ORIGINAL ARTICLE Proxy Evaluation of Health-Related Quality of Life A Conceptual Framework for Understanding Multiple Proxy Perspectives A. Simon Pickard, PhD,* and Sara J. Knight, PhD† proxy HRQL assessments from each viewpoint. Future research and Abstract: Proxy assessment of health-related quality of life (HRQL) use of proxy raters of HRQL in clinical trials, population health may be sought to substitute for, or to complement, patient self- monitoring, resource allocation, and clinical management can be assessment. The viewpoint from which the proxy is asked to assess informed by explicit consideration of the suggested framework. the patient is a subtle yet important aspect of proxy assessment. Proxy assessments can be elicited by asking a proxy to assess the Key Words: proxy, health status, caregiving, quality of life, patient as they think the patient would respond (ie, proxy-patient provider/patient communication perspective) or for the proxy to provide their own perspective on the (Med Care 2005;43: 493– 499) patient’s HRQL (ie, proxy-proxy perspective). In this article, we introduce a framework for differentiating between and understand- ing HRQL assessments according to rater viewpoint. The difference between patient self-assessment and the proxy-patient perspective is defined as the inter-rater gap, whereas the difference between the ealth-related

Journal

Medical CareWolters Kluwer Health

Published: May 1, 2005

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